Our Preparedness Work

Timely and transparent sharing of data in a public health emergency (PHE) remains challenging, mainly due to lack of incentives, the absence of appropriate infrastructure, and complex ethical and legal demands. Our goal is to make effective data sharing during PHE a reality.

Principles of Data Sharing in Public Health Emergencies

The newly released Principles of Data Sharing in Public Health Emergencies provides a framework for timely data sharing during an outbreak. They can be used to support data sharing in PHEs as part of the research response, from preparedness and public health response to the development of vaccines, diagnostics and therapeutics.

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Ebola outbreak

The Ebola outbreak in the Democratic Republic of Congo galvanized GloPID-R Member Wellcome Trust to publish a statement on sharing research findings and data relevant to PHEs. Many GloPID-R members, funding bodies, researchers and journals shown their commitment to improving the public health by sharing data rapidly during an outbreak.

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Working Group

Data and knowledge sharing in public health emergencies helps support evidence-based decision making. This increases the likelihood of an effective response and reduced morbidity and mortality. It also facilitates studies of new interventions for epidemic and pandemic threats and accelerates the delivery of necessary vaccines, therapeutics and diagnostics.

GloPID-R established the Data Sharing Working Group in March 2016 under the leadership of Katherine Littler (Wellcome Trust) with the objective of developing a system for data sharing during PHEs to support the research response.

This work is intended to support the WHO R&D Blueprint, a global mechanism to accelerate and coordinate research and development (R&D) in PHEs, which addresses both research preparedness and the response during crises.

The group’s goal is to ensure that the principles, tools and approaches developed are useful, relevant and valuable for the broader community involved in emergency response. They are interested in engaging with specific groups such as NGOs, epidemiologists, software developers, industry and scientists as their work develops.

Interested in working together? Contact the Data Sharing Working Group.

Working Group Participants

Wellcome Trust, UK

Katherine Littler

Chair

World Health Organization (WHO)

Farah Al-Shorbaji

National Library of Medicine, USA

Stacey Arnesen

National Health and Medical Research Council, Australia

Wee-Ming Boon

Canadian Institutes of Health Research (CIHR), Canada

Alison Bourgon

Wellcome Trust, UK

Lenio Capsaskis

Wellcome Open Research, Wellcome Trust, UK

David Carr

GloPID-R Secretariat

Gail Carson

European Commission

Assunta Cecere

German Federal Ministry for Education and Research (BMBF), Germany

Jeannette Endres-Becker

Canadian Institutes of Health Research

Matthew Garsia

Ministry of Health, Italy

Gaetano Gugliemi

Wellcome Trust, UK

Alice Jamieson

Bill & Melinda Gates Foundation, USA

Steven Kern

European Commission

Maria Klimathianaki

Norwegian Institute of Public Health, Norway

Gun Peggy Knudsen

Wellcome Trust, UK

Sophie Mathewson

Institut National de la Santé et de la Recherche Médicale (INSERM), France

France Mentre

National Institutes of Health, USA

France Daniel Mietchen

World Health Organization (WHO)

Vasee Moorthy

South African Medical Research Council (SA MRC), South Africa

Jeffrey Mphahlele

European & Developing Countries Clinical Trials Partnership (EDCTP), The Netherlands

Magda Moutaftsi

Instituto de Salud Carlos III, Spain

Carlos Segovia

National Research Foundation of Korea, Seoul National University, South Korea

Seung-Hyeok Seok