Data Sharing

• GloPID-R Roadmap for Data Sharing in Public Health Emergencies (2019)
• Data sharing in public health emergencies: Learning lessons from past outbreaks (2018)
• Principles of Data Sharing in public health emergencies (2018)

• Support research response during public health emergencies through the development of data sharing systems.
• Feed into the WHO R&D Blueprint developed to accelerate and coordinate preparedness and response research during public health emergencies.

Data and knowledge sharing are critical to ensuring evidence-based decision making during public health emergencies. Particularly during infectious disease outbreaks, data and knowledge sharing can facilitate research into new interventions for pandemic threats and accelerate the delivery of vaccines, therapeutics and diagnostics. Despite the importance of data sharing, it remains a challenge, especially due to a lack of appropriate infrastructure, incentive and legal demand.

GloPID-R established the Data Sharing Working Group in 2016 with the aim of developing data sharing systems that can support the research response during public health emergencies. The group seeks to ensure that the principles, tools and approaches developed are valuable to the broader community and therefore seeks engagement with NGOs, software developers, epidemiologists and scientists.

• Bill & Melinda Gates Foundation, US
• Canadian Institutes for Health Research (CIHR)
• European Commission (EC)
• French National Agency for Research on AIDS and Viral Hepatitis (ANRS)
• Korea Research Institute of Bioscience & Biotechnology (KRIBB)
• National Health and Medical Research Council Australia (NHMRC AU)
• The Netherlands Organisation for Health Research & Development (ZonMW)
• Norwegian Institute of Public Health
• Wellcome Trust