GloPID-R/ISARIC Joint Research Forum informs the creation of a long COVID research agenda
‘Creating a Publicly-Led Long COVID Research Agenda: A mixed methods approach from Kenya and Malawi’ was published 21 January by the Wellcome Trust, a GloPID-R member, outlining key priorities to inform the direction of future Long COVID research.
In response to calls for a stronger focus on Long COVID research, the report advances our understanding of how Long COVID affects patients, caregivers and health care professionals. Its findings were based on discussions directly with communities in Kenya and Malawi; more than 1,700 research participants in these countries shared their experience of Long COVID.
The study also builds on the outcomes of the GloPID-R/ISARIC Long COVID Joint Research Forum, organized in December 2020 with the aim of gaining a better understanding of the long-term impact of COVID-19 in adults and children. The research priorities and other information about Long COVID research projects highlighted during the Forum were particularly useful for contextualising the study. In addition, the GloPID-R Research Roadmap and research mapped on the COVID-19 Project Tracker provided data on which the report’s findings are based.
“Long COVID is now a persistent global issue and this latest Publicly-Led Long COVID Research Agenda highlights the many research questions remaining to be addressed,” said Alice Norton, Scientific Manager of the GloPID-R Oxford-based Secretariat. Alice was a member of the Expert Advisory Board for this study.