GLOPID-R

The newly designed GloPID-R Roadmap for Data Sharing in Public Health Emergencies (PHEs) unveiled during the 2019 General Assembly

The GloPID-R Roadmap for Data Sharing in PHEs was presented at the side event on Data Sharing during the GloPID-R General Assembly in Tokyo on May 13, 2019. Gail Carson, GloPID-R Secretariat, gave an overview of the Data Sharing Working Group including the Roadmap. The Roadmap itself is the outcome of a series of studies including case studies, the funders’ survey and the report on a data sharing meeting hosted by Wellcome in December 2018.

Alice Norton, GloPID-R Secretariat Senior Adviser, presented the data sharing Roadmap strategic framework (which contains the high-level recommendations from the Roadmap). Currently, many efforts by GloPID-R funders on data sharing take place in isolation; one way forward is to enhance collaboration among funders. The five key recommendations for improving data sharing in PHEs by the grantees of GloPID-R research funders were presented and discussed during the side event:

Recommendation Priority
Improve funder policies Improve data sharing in PHEs by the grantees of GloPID-R research funders
Align tools and strengthen capacity
Build trust
Influence other stakeholders Improve data sharing in PHEs by all stakeholders
Strengthen systems Foster a culture and create an infrastructure where data sharing is an integral part of research

The Roadmap authors Alice Norton, Raul Pardinaz-Solis and Gail Carson would like to acknowledge all the individuals who contributed through the consultation process for this Roadmap.

GloPID-R Members

  • Bethania Almeida, Instituto Fiocruz
  • Renato Mancini Astray, Instituto Butantan
  • Mauricio Berreto, Instituto Fiocruz
  • Margreet Bloemers, Netherlands Organization for Health Research and Development (ZonMw)
  • Walter Colli, Sao Paulo Research Foundation (FAPESP)
  • Amanda Crupi and KT Team, Canadian Institutes of Health Research (CIHR)
  • Diego Galeano, Secretariat of Government of Science, Technology and Productive Innovation
  • Raman Gangakhedkar, Indian Council of Medical Research (ICMR)
  • Eung Soo Hwang, National Research Foundation of Korea
  • Alice Jamieson, Wellcome
  • Anne Kelso, National Health and Medical Research Council (NHMRC)
  • Barbara Kerstiens European Commission (EC)
  • Nadia Khelef, Institute Pasteur International Network (IPIN)
  • Anna Kinsey, Medical Research Council (MRC)
  • Maria Klimathianaki European Commission (EC)
  • Glaudina Loots, Department of Science and Technology (DST)
  • Jennifer Maroa, African Academy of Sciences (AAS)
  • Shoji-Miyagawa, Japan Agency for Medical Research and Development (AMED)
  • Jonathan Pearce, Medical Research Council (MRC)
  • Jan van Uum, German Federal Ministry of Education and Research (BMBF)
  • David Vaughn, German Federal Ministry of Education and Research (BMBF)

Stakeholders

  • Massimo Ravasini, MSF
  • David Heymann, Chatham House (UK)
  • Laura Merson, IDDO

To further disseminate the information found in the Roadmap, members presented at the Heads of International Research Organizations (HIROs) meeting on June 17-19, 2019.

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The GloPID-R Secretariat is a project which receives funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 874667.